CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1146

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12388	C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12346	C12346	Respiratory lung volume recruitment breath per cycle count	Count of the number of breaths per cycle of lung volume recruitment device use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1071-C12688	C12688	Orthosis knee ankle foot orthosis ischial weight bearing indicator	Indicator whether any knee-ankle-foot orthosis (KAFO) currently used by the participant/subject is ischial weight bearing	Supplemental	External Devices - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2011-C12236	C12236	Biopsy amyloid present on Congo red stain indicator	Indicator of whether there was biopsy amyloid present on the Congo Red stain	Supplemental-Highly Recommended	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12489	C12489	Imaging subcortical cysts site type	The anatomical site(s) of the subcortical cysts	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12447	C12447	Polysomnography blood oxygen saturation drop hour awake count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12396	C12396	Respiratory supplemental oxygen value	Value of the flow rate of supplemental oxygen	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12248	C12248	Pathologist name	Name of pathologist who diagnosed the case	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12354	C12354	Respiratory intrapulmonary percussive ventilation or MetaNeb frequency	Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12233	C12233	Preservation technique used type	Type of preservation technique used to preserve the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12497	C12497	Imaging cerebellum abnormality type	The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12753	C12753	Electrophysiology expiratory inspiratory ratio	Ratio of the expiratory time to the inspiratory time during the breathing cycle measured during autonomic function testing	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12455	C12455	Polysomnography transcutaneous carbon dioxide measurement grade	Grade of the transcutaneous CO2 (TcCO2) measurements being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12257	C12257	Biopsy and autopsy nemaline rod type	Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12362	C12362	Respiratory other airway clearance method session time	Time it takes per session for the participant/subject to use the other airway clearance method	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12322	C12322	Respiratory mechanical in-exsufflator inhale pressure value	Value of the inhale pressure setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12761	C12761	Electrophysiology quantitative sweat function distal leg measurement	The amount of sweat collected on the distal leg	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12177	C12177	Dual X-ray absorptiometry hip raw score	Dual X-ray absorptiometry (DEXA) Hip raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10590	C10590	Imaging interpolation indicator	Whether the k-space data were interpolated before applying Fourier transform	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12463	C12463	Polysomnography heart rate REM sleep value	Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12370	C12370	Respiratory support device type	Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12283	C12283	Tissue abnormality mitochondria type	Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12330	C12330	Respiratory manual cough assist use daily frequency	Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

Displaying 1051 - 1075 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.