C21936
Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale
Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C21935
Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale
Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL)
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C21934
Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale
Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C21933
Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale
Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C21930
Pediatric Quality of Life Inventory (PedsQL) - Problem hurt ache scale
Scale of problems with having hurts or aches, as part of the Pediatric Quality of Life Inventory (PedsQL)
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C19736
Respiration intervention invasive tracheostomy tube indicator
Indicator of invasive respiratory support including a tracheostomy tube
Supplemental
Respiratory Interventions
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18689
Imaging anatomic site other text
The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18696
Imaging dimension other text
The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used
Supplemental
Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18666
Body system other text
The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured
Supplemental
Physical Examination
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18729
Lab panel other text
The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)
Supplemental
Laboratory Tests and Tracking
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18678
Family history medical condition other text
The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken
Supplemental
Family History - SMA
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18697
Imaging fat signal suppressor used method other text
The free-text field related to 'Imaging fat signal suppressor used method type' specifying other text. Type of method used to suppress fat signal in imaging acquisition
Supplemental
Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18765
Surgical or therapeutic procedure other text
The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject
Supplemental
Surgical and Hospitalization History - SMA
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18767
Temperature measurement other text
The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured
Supplemental
Vital Signs
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18731
Lab test other text
The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions
Core
Laboratory Tests and Tracking
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18689
Imaging anatomic site other text
The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18703
Imaging parallel acquisition used other text
The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition
Supplemental
Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18715
Imaging radio frequency coil other text
The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18751
Sex participant or subject genotype other text
The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement
Supplemental
Demographics
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18690
Imaging analysis software other text
The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18689
Imaging anatomic site other text
The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study
Supplemental
Magnetic Resonance Spectroscopy (MRS)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18703
Imaging parallel acquisition used other text
The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition
Supplemental
Diffusion Tensor Imaging (DTI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18677
Employment other text
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Supplemental
Social Status
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18666
Body system other text
The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured
Supplemental
Medical History - SMA
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C18684
Health insurance other text
The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care
Supplemental
Social Status
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)