CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12209 Gastrointestinal therapy feed schedule table number

Number of the table used to describe the participant/subject's feeding schedule

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10778 Electrophysiology motor unit number estimation muscle studied name

Name of the muscle studied using the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10960 Spectroscopy PRESS symmetry type

Whether the echo time (TE) used in the PRESS (double spin-echo) sequence is symmetrically or asymmetrically divided

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12660 Milestone currently able indicator

Whether the participant/subject is currently able to complete or perform the milestone

 Core Motor Milestones and Current Level of Function - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11078 Delivery mode type

Type of delivery mode of the neonate

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Core Physical Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12764 Electrophysiology tilt study blood pressure change result

Blood Pressure changes experienced from a tilt test

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12266 Biopsy and autopsy excessive intracellular lipid severity grade

Severe lipid storage pathology involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild lipid storage pathology is difficult to determine at the light microscopic level and may only be evident on Oil Red O stain or on electron microscopy

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12674 Surgical history procedure scoliosis type

Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18805 Hospitalization other text

The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12683 Mobility device type

Type for all mobility devices currently used by the participant/subject

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18870 Mobility device other text

The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12756 Electrophysiology blood pressure response Valsalva phase II early result

The blood pressure response to valsalva maneuver during Phase II early

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12637 Spinal muscular atrophy symptom club foot side indicator

Indicator of the side of the body on which the participant/subject has a club foot

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

 Supplemental Demographics False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 401 - 425 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.