CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12607 Education level maternal USA type

Indicator of the highest level of education completed by the participant/subject's mother

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

Core Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12627 Respiratory intervention neonatal oxygen required indicator

Whether oxygen was needed during the neonatal period (i.e., first 28 days of life)

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12292 Tissue specimen Langerhans cell process result type

Result for the number of Burden of Langerhans cell processes in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10782 Electrophysiology motor unit number estimation method used type

Type of method or technique used for MUNE (motor unit number estimation)

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 326 - 350 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.