CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12442 Polysomnography percent sleep time non-REM percent blood oxygen saturation value

Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18845 Respiratory intrapulmonary percussive ventilation cup liquid other text

The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17948 Scanner magnetic field other strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported, if unlisted

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12380 Respiratory negative pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12338 Respiratory lung volume recruitment method type

Type of lung volume recruitment method used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12709 Electrophysiology blink reflex test electrode type

Type of electrode used for the blink reflex test

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17902 Elevated creatine kinase value

The elevated creatine kinase value

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12388 Respiratory ventilation mode bi-level positive pressure type

Type of bi-level positive pressure ventilation used by the support ventilation device

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12346 Respiratory lung volume recruitment breath per cycle count

Count of the number of breaths per cycle of lung volume recruitment device use

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

Core Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12718 Electrophysiology repetitive nerve stimulation study preactivation number

The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12396 Respiratory supplemental oxygen value

Value of the flow rate of supplemental oxygen

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12287 Tissue specimen section count

Count of the number of sections from the tissue specimen that were taken and evaluated

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12354 Respiratory intrapulmonary percussive ventilation or MetaNeb frequency

Frequency of intrapulmonary percussive ventilation or MetaNeb use

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18826 Gastrointestinal therapy feed tube other text

The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12306 Ulna length measurement

The length of the ulna of the participant/subject

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.