C12331
Respiratory manual cough assist session time
The duration of manual cough assist use per session
Supplemental
Respiratory Interventions
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C17402
Site name
The name of the site for the study
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C14964
Sedation used indicator
Whether the participant/subject was administered any sedation
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C17506
Cardiac MRI result comment text
Results comments on the cardiac Magnetic Resonance Imaging results
Supplemental
Cardiac Magnetic Resonance Imaging (MRI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C15572
Imaging diffusion direction count
Count of diffusion directions in the associated diffusion imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08503
36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score
Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08511
36-item Short Form Health Survey (SF-36) - Health limited walking one block score
Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08527
36-item Short Form Health Survey (SF-36) - Times energy score
Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08504
36-item Short Form Health Survey (SF-36) - Health limited moderate activities score
Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08512
36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score
Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08520
36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score
Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08528
36-item Short Form Health Survey (SF-36) - Times downhearted blue score
Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08529
36-item Short Form Health Survey (SF-36) - Times worn out score
Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08521
36-item Short Form Health Survey (SF-36) - Bodily pain score
Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08530
36-item Short Form Health Survey (SF-36) - Times happy score
Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08506
36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score
Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08514
36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator
Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08522
36-item Short Form Health Survey (SF-36) - Pain interfere work score
Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08531
36-item Short Form Health Survey (SF-36) - Times tired score
Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08507
36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score
Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08515
36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator
Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08523
36-item Short Form Health Survey (SF-36) - Times pep score
Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08532
36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score
Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08508
36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score
Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
C08524
36-item Short Form Health Survey (SF-36) - Times nervous score
Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)