CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1093-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C10777	C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12728	C12728	Needle electromyography electrode type	Type of electrode used for the needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12709	C12709	Electrophysiology blink reflex test electrode type	Type of electrode used for the blink reflex test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12368	C12368	Respiratory airway clearance medication delivery method type	Type of drug delivery method the participant/subject uses for the airway clearance medication	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12468	C12468	Imaging brain magnetic resonance imaging perform multiple count type	Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C17877	C17877	Polysomnography end time clock type	Type of clock used to record the time at which the sleep study ended	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C17879	C17879	Polysomnography start time clock type	Type of clock used to record the time at which the sleep study began	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C17967	C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG/EKG) administration	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1092-C10615	C10615	Clinical event or milestone type	Type of clinical event or milestone pertinent to the disease or disorder	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12388	C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C12919	C12919	Cardiovascular Holter exam atrial dysrhythmia type	Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12389	C12389	Respiratory ventilation mode assist control type	Type of assist control ventilation used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12431	C12431	Polysomnography apnea hypopnea index type	Type of Apnea-Hypopnea Index (AHI) event for which results are being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12282	C12282	Tissue abnormality myelination type	Type of any observed myelination in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12283	C12283	Tissue abnormality mitochondria type	Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C12835	C12835	ECG bundle branch block type	Type of any complete or incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1071-C12687	C12687	Orthosis ankle foot orthosis type	Type of any ankle-foot orthosis (AFO) currently used by the participant/subject	Supplemental	External Devices - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1073-C12632	C12632	Spinal muscular atrophy symptom type	Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12319	C12319	Respiratory device type	Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.