CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1026 - 1050 of 1146

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1055-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12252	C12252	Biopsy and autopsy fiber size variation result type	Distribution of the atrophic fibers	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12175	C12175	Dual X-ray absorptiometry performed date	Date the dual X-ray absorptiometry (DXA) was performed	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12425	C12425	Polysomnography study date	Date on which the polysomnography (sleep study) being reported was performed	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12532	C12532	Gastrointestinal therapy feed tube first place date	Date on which the participant/subject's feeding tube was first placed	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12203	C12203	Gastrointestinal therapy fundoplication date	Date on which the participant/subject had fundoplication surgery	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12535	C12535	Gastrointestinal therapy feed schedule end date	Date on which the feeding schedule for gastrointestinal therapy ended, if applicable	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12224	C12224	Gastrointestinal therapy feed schedule start date	Date on which the feeding schedule for gastrointestinal therapy began	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12381	C12381	Respiratory tracheostomy date	Date of the participant's/subject's tracheostomy	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12375	C12375	Respiratory positive pressure device initiation date	Date of initiation of the non-invasive, positive pressure device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12379	C12379	Respiratory negative pressure device initiation date	Date of initiation of non-invasive, negative pressure	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12615	C12615	Delivery or pregnancy termination maternal last date and time	Date and time (if applicable and known) of the participant's/subject's mother's last delivery, miscarriage or medical termination	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1089-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C11098	C11098	Pulmonary function test date and time	Date (and time, if applicable and known) the pulmonary function test was performed	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1075-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1031-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1075-C05408	C05408	Hospital admission date and time	Date (and time, if applicable and known) the participant/subject was admitted to the hospital	Supplemental	Surgical and Hospitalization History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1073-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1096-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental	Medical History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C12916	C12916	Cardiovascular Holter exam stop date time	Date (and time, if applicable and known) the Holter examination stopped	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

Displaying 1026 - 1050 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.