CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12291 Tissue specimen counting threshold type

Type of threshold for counting in the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12292 Tissue specimen Langerhans cell process result type

Result for the number of Burden of Langerhans cell processes in the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18830 Tissue specimen collection anatomic site other text

The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12285 Tissue specimen collection anatomic site

Anatomic site from which the tissue specimen was collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18831 Tissue specimen section quantify other text

The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12369 Respiratory airway clearance medication frequency

Value of the frequency the participant/subject uses the airway clearance medication

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12329 Respiratory manual cough assist use frequency

Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12337 Respiratory postural drainage session time

Time it takes per session for the participant/subject to use postural drainage therapy

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12345 Respiratory lung volume recruitment cycle number count

Count of the number of cycles completed per session of lung volume recruitment device use

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12395 Respiratory pressure support value

Value of the pressure support

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12353 Respiratory intrapulmonary percussive ventilation or MetaNeb type

Type of intrapulmonary percussive ventilation or MetaNeb device used

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12361 Respiratory other airway clearance method use daily freq

Frequency of use of other airway clearance method on a daily basis

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12321 Respiratory mechanical in-exsufflator device use daily frequency

Frequency of daily use of the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 76 - 100 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.