CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12177 Dual X-ray absorptiometry hip raw score

Dual X-ray absorptiometry (DEXA) Hip raw score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

 Supplemental Demographics False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10743 Echocardiogram tricuspid valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12413 Pulmonary blood gas type

The type of blood gas collected

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10590 Imaging interpolation indicator

Whether the k-space data were interpolated before applying Fourier transform

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12265 Biopsy and autopsy diagnostic abnormalities severity grade

Severity of the diagnostic muscle abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12446 Polysomnography blood oxygen saturation drop hour non-REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17961 Cardiovascular aortic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12283 Tissue abnormality mitochondria type

Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12769 Electrophysiology long pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12185 Dual X-ray absorptiometry proximal femur Z Score

Dual X-ray absorptiometry (DEXA) proximal femur Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12864 Echocardiogram left atrial dimension measurement

Measurement of the left atrial dimension obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12421 Pulmonary gas exchange lowest oxygen saturation value

The lowest recorded oxygen saturation (SpO2) value

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12469 Imaging magnetic resonance imaging session number

Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12273 Biopsy and autopsy normal immunoreactivity assay name

Name of the normal immunoreactivity assay used

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12681 Hospitalization non-surgical ventilation indicator

Indicator of whether the participant/subject was ventilated while in the hospital for the specified non-surgical reason

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 151 - 175 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.