CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12450 Polysomnography end tidal carbon dioxide total sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during total sleep

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12632 Spinal muscular atrophy symptom type

Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12905 Echocardiogram left ventricular mass index measurement

Measurement of the left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density, corrected for body surface area obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12240 Biochemical or genetic test performed indicator

Indicator of whether subsequent biochemical or genetic testing was performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12503 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity indicator

Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12759 Electrophysiology quantitative sweat function forearm measurement

The amount of sweat collected on the forearm

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12458 Polysomnography transcutaneous carbon dioxide non-REM sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12411 Pulmonary gas exchange oxygen saturation value

The value of the oxygen saturation (SpO2) check

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12263 Biopsy and autopsy abnormal storage material type

Excesses of material can be detected in some lipid and glycogen storage diseases, which may be evident on Oil Red O and PAS stains, respectively

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12913 Echocardiogram study quality type

Type of quality of the echocardiogram study

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12281 Tissue abnormality myelin axon decrease status

Status of any observed decrease in the myelinated axon numbers of the epon-embedded tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17931 Imaging magnetic resonance imaging performed indicator

Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12767 Electrophysiology short post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 151 - 175 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.