CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12232 Laboratory director name

Name of laboratory director where assessment was performed

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12684 Mobility device type use indicator

Indicator whether the participant/subject currently uses the selected types of mobility device

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12197 Dual X-ray absorptiometry left leg lean value

Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12887 Echocardiogram left ventricular concentric remodel status

Status of concentric remodeling in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12205 Gastrointestinal therapy feed tube placement method type

Type of method by which the participant/subject's feeding tube was placed

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12740 Electrophysiology neuromuscular jitter activation technique type

The activation technique used for the neuromuscular jitter test

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17960 Cardiovascular Holter exam tachycardia episode total count

Count of the total number of tachycardia episodes during the Holter examination

 Supplemental Holter Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17945 Spectroscopy sequence parameter PRESS asymmetry TE2 value

Value, in ms, of echo time (TE) 2 for an asymmetric PRESS sequence if used in the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12378 Respiratory support negative pressure device delivery method type

Type of non-invasive, negative pressure delivery method supported by the device

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Vital Signs False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12336 Respiratory postural drainage use daily frequency

Frequency of postural drainage use if it is used daily

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17894 Gene missense nonsense variant point mutation location intron text

The free-text field about missense/nonsense variant or point mutation at the intron

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10727 Echocardiogram left ventricular internal dimension end diastole measurement

Measurement of left ventricular end - diastolic internal dimension (LVIDd) obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.