CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17885 Gastrointestinal therapy other feed tube text

Text identification of unlisted tube type through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12326 Respiratory mechanical in-exsufflator pause duration

Value of the pause time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12665 Certainty of response type

Certainty of recollection of the response or information

Supplemental Motor Milestones and Current Level of Function - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12823 ECG atrial rate

Rate measured in beats per minute of atrial contractions recorded in the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12213 Gastrointestinal therapy continuous feed start time

Time of day that the participant/subject's continuous feeding is normally begun

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12190 Dual X-ray absorptiometry whole body total fat value

Percentage of total body fat for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12262 Biopsy and autopsy microorganisms name

Name of microorganisms identified in biopsy or autopsy specimen

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12459 Polysomnography transcutaneous carbon dioxide awake value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18850 Respiratory tracheostomy tube timing other text

The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10964 Imaging eddy current induced spectral distortion correction indicator

Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12912 Echocardiogram pericardial effusion abnormal indicator

Indicator of whether there is pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12280 Specimen immunohistochemical stain result

Result of immunohistochemical stain performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12766 Electrophysiology short pre-exercise compound muscle action potential measurement

The compound muscle action potential (CMAP) values measured at the pre-exercise intervals

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12607 Education level maternal USA type

Indicator of the highest level of education completed by the participant/subject's mother

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10933 Imaging lesion found type

Type of lesions found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12223 Gastrointestinal therapy other oral intake estimate caloric value

Value of the subject/participant's caloric intake received through other oral intake

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12512 Dual X-ray absorptiometry line number

Indication of the number of each DXA performed for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.