CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
1146 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12306 Ulna length measurement

The length of the ulna of the participant/subject

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12315 Pulmonary function forced vital capacity leak indicator

Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Medical History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C58650 Tissue specimen section thickness not known indicator

Indicator that the tissue specimen thickness is not known

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04513 ECG ST segment abnormality status

Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) on the electrocardiogram (ECG/EKG) being reported

 Core Electrocardiogram (ECG) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04505 ECG left ventricular hypertrophy status

Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

 Core Electrocardiogram (ECG) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

 Core Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

 Core Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

 Core Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

 Core Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12316 Pulmonary function forced vital capacity large value range indicator

Whether the two largest values of forced vital capacity (FVC) are within 10% of each other

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01541 Weight measurement

Measurement of participant's weight

 Core Vital Signs False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
1146 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.