CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 876 - 900 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12371 Respiratory Intervention-support device brand name

The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12935 Cardiovascular Holter exam ventricular contraction morphology type

Type of morphology of the ventricular contraction

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12855 Cardiac MRI myocardial scar result status

Status of the result of evaluation of the cardiac magnetic resonance imaging (MRI) for my ocardial scarring on the selected ventricle

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17909 Tissue specimen comment other text

Text description of any other comments pertaining to the pathology examination of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12511 Imaging post-processing raw data save indicator

Indicator of whether raw data was saved in post processing

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12339 Respiratory lung volume recruitment use frequency

Frequency of lung volume recruitment use

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12220 Gastrointestinal therapy estimate caloric intake value

Value of the participant/subject's caloric intake received through formula

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12610 Death location type

Type of location where the participant/subject died

Supplemental Death Report Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12240 Biochemical or genetic test performed indicator

Indicator of whether subsequent biochemical or genetic testing was performed

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 876 - 900 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.