CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 876 - 900 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12329 Respiratory manual cough assist use frequency

Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12741 Electrophysiology neuromuscular jitter stimulation type

Indicator of the stimulation technique, if applicable, used for activation in the neuromuscular jitter study being described

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12808 Gene sequenced with no variant mutation indicator

Indicator of whether there are additional genes sequenced with no variants or mutations detected

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18879 Cardiovascular Holter predominant heart rhythm type other text

The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12700 Electrophysiology motor nerve dispersion result

Amount of test signal dispersion measured during the motor nerve conduction study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17946 Spectroscopy sequence parameter repetition time duration

Duration, in ms, of the repetition time (TR) as a spectroscopic sequence parameter in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12897 Echocardiogram right ventricle end diastolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12217 Gastrointestinal therapy continuous feed formula rate

Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12450 Polysomnography end tidal carbon dioxide total sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during total sleep

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 876 - 900 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.