CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12365 Respiratory airway clearance medication concentration value

Value of the concentration of the airway clearance medication used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12865 Echocardiogram left atrial volume measurement

Measurement of the left atrial volume obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12274 Biopsy and autopsy reduced immunoreactivity assay name

Reduced immunoreactivity that were noted on the immunohistochemical stains

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17929 Cardiac MRI overall impression text

Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17971 Hospitalization non surgical number

Number used to identify the non-surgical hospitalization being described

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C54237 Echocardiogram pericardial effusion abnormal text

Free-text field to describe pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12539 Imaging fluid attenuated inversion recovery sequence indicator

Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12679 Mobility device use indicator

Whether the participant/subject uses a mobility device (e.g., wheelchair)

Supplemental External Devices - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12873 Echocardiogram tricuspid valve stenosis degree status

Status of the degree of tricuspid valve stenosis as assessed by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12524 Inflammation severity status

Severity of Inflammation muscle diagnostic abnormalities

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12239 Electron microscopy performed indicator

Indicator of whether electron microscopy was performed

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18697 Imaging fat signal suppressor used method other text

The free-text field related to 'Imaging fat signal suppressor used method type' specifying other text. Type of method used to suppress fat signal in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12943 Orthosis type

Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12237 Specimen overall interpretation status

Status of the overall assessment of the specimen

Supplemental Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12383 Respiratory tracheostomy tube size measurement

Measurement of the size of the tracheostomy tube

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.