CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12837 Cardiac MRI ventricle systolic function result status

Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12829 ECG atrial enlargement left status

Status of left atrial enlargement present or absent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10945 Imaging voxel volume measurement

Volume of the voxel calculated by multiplying the three size measurements

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12349 Respiratory high frequency chest wall oscillation system use frequency

Frequency of use of the high frequency chest wall oscillation system

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12787 Gene variant mutation category

Category of the variant or mutation detected on the gene

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12918 Cardiovascular Holter exam maximum heart rate duration

Duration of maximum heart rate recorded during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12616 Pregnant prior history miscarry count

Count of prior miscarriages (spontaneous abortions) that the participant/subject's mother has had

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12846 Cardiac MRI left ventricle posterior wall thickness measurement

Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12267 Biopsy and autopsy liver biopsy autopsy results

The results of the liver biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17906 Specimen immunohistochemical stain use indicator

Indicator whether immunohistochemcial stains were used on the tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12771 Electrophysiology long exercise test post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise for the long exercise test

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12423 Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value

The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12430 Polysomnography sleep total duration

Duration for which the participant/subject was asleep during the sleep study

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 251 - 275 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.