CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2011-C12236	C12236	Biopsy amyloid present on Congo red stain indicator	Indicator of whether there was biopsy amyloid present on the Congo Red stain	Supplemental-Highly Recommended	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12718	C12718	Electrophysiology repetitive nerve stimulation study preactivation number	The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12448	C12448	Polysomnography end tidal carbon dioxide measured indicator	Indicator of whether end-Tidal CO2 (ETCO2) was measured in the polysomnography being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C12834	C12834	ECG bundle branch block incomplete status	Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1032-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12222	C12222	Gastrointestinal therapy other oral intake text	Text of other nutriment taken orally, if any	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12629	C12629	Neonatal intensive care unit stay duration	Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1038-C12407	C12407	Pulmonary gas exchange assessment date	The assessment date of the gas exchange measurement	Supplemental	Measures of Gas Exchange	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12726	C12726	Electrophysiology repetitive nerve postactivation amplitude measurement	Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12456	C12456	Polysomnography transcutaneous carbon dioxide total sleep value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1032-C12602	C12602	Discharge post acute location	Location, post-acute discharge, at which participant/subject is currently staying	Supplemental	Social Status	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2011-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C17884	C17884	Gastrointestinal therapy continuous feed start time value	The value for the time of day that the participant/subject's continuous feeding is normally begun	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1038-C12415	C12415	Pulmonary blood gas partial pressure carbon dioxide value	The numeric value of the blood gas partial pressure of carbon dioxide (PCO2) in the blood	Supplemental	Measures of Gas Exchange	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12734	C12734	Needle electromyography motor unit action potential stable indicator	The stability of the action potential measure during needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12398	C12398	Respiratory support schedule daily hour value	Value of the number of hours of daily ventilation device use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12464	C12464	Polysomnography heart rate non-REM sleep value	Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.