CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant/subject's death	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12378	Respiratory support negative pressure device delivery method type	Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12336	Respiratory postural drainage use daily frequency	Frequency of postural drainage use if it is used daily	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12271	Western Blot assay performed name	Name(s) of the assay performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10727	Echocardiogram LVIDd measurement	Left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C08507	36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score	Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12707	Electrophysiology H-reflex latency left value	The H-reflex duration of latency for the left side of the body	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12665	Certainty of response type	Certainty of recollection of the response or information	Supplemental	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12823	ECG atrial rate	Rate measured in beats per minute of atrial contractions recorded in the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12386	Respiratory tracheostomy tube timing type	Type of inflation/deflation timing settings for cuffed tubes	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12344	Respiratory lung volume recruitment pause time value	Value for the pause time setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12519	Myofiber degeneration severity status	Severity of the Myofiber degeneration muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C08515	36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator	Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12716	Electrophysiology repetitive nerve stimulation study stimulus duration	Duration, in ?s, of stimulation in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12234	Preservation technique used amount value	Value of the amount of preservation solution or material used to preserve the specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10588	Imaging echo train length measurement	Measurement of the echo train length used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12841	Cardiac MRI ventricle end diastolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12832	ECG atrioventricular block second degree status	Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.