CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1207
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

 Supplemental Physical Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12320 Respiratory mechanical in-exsufflator device use frequency

Frequency of use of the mechanical in-exsufflator by the participant/subject

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17903 Biopsy and autopsy abnormalities on immunohistochemistry text

Text regarding abnormalities on immunohistochemistry

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08531 36-item Short Form Health Survey (SF-36) - Times tired score

Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12732 Needle electromyography motor unit action potential duration

The duration of the motor unit action potential during needle electromyography

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12938 Cardiovascular Holter exam global result status

The overall results of the Holter examination

 Supplemental Holter Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12859 Cardiac MRI other cardiac anatomy structure result

Result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10782 Electrophysiology motor unit number estimation method used type

Type of method or technique used for MUNE (motor unit number estimation)

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18831 Tissue specimen section quantify other text

The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17937 Spectroscopy geometry location indicator

Indicator related to anatomical site of voxel or slice of the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12368 Respiratory airway clearance medication delivery method type

Type of drug delivery method the participant/subject uses for the airway clearance medication

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01522 Height measurement

Measurement of participant's/subject's height

 Supplemental Vital Signs False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12328 Respiratory mechanical in-exsufflator session cycle breath count

Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17411 Gestational age weeks delivery duration

Duration of gestation (gestational age or GA) at the time of the participant/subject's delivery

 Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12740 Electrophysiology neuromuscular jitter activation technique type

The activation technique used for the neuromuscular jitter test

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12263 Biopsy and autopsy abnormal storage material type

Excesses of material can be detected in some lipid and glycogen storage diseases, which may be evident on Oil Red O and PAS stains, respectively

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17960 Cardiovascular Holter exam tachycardia episodes total number

Total number of tachycardia episodes during the Holter examination

 Supplemental Holter Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11136 Country of origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08238 Imaging repetition gap value

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 176 - 200 of 1207

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.