CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12544 Imaging anatomical reference orientation value

Value, in degrees, of the orientation of the anatomical reference image sequence in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12368 Respiratory airway clearance medication delivery method type

Type of drug delivery method the participant/subject uses for the airway clearance medication

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01522 Height measurement

Measurement of participant's height

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12328 Respiratory mechanical in-exsufflator session cycle breath count

Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

Supplemental Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12740 Electrophysiology neuromuscular jitter activation technique type

The activation technique used for the neuromuscular jitter test

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17960 Cardiovascular Holter exam tachycardia episode total count

Count of the total number of tachycardia episodes during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17945 Spectroscopy sequence parameter PRESS asymmetry TE2 value

Value, in ms, of echo time (TE) 2 for an asymmetric PRESS sequence if used in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12378 Respiratory support negative pressure device delivery method type

Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12896 Echocardiogram left ventricle end diastolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12216 Gastrointestinal therapy feed formula dose

Dose, in mL, of formula that the participant/subject receives at each feeding for non-continuous feeding

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12494 Imaging pons abnormal indicator

Indicator of whether the pons appears normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12449 Polysomnography end tidal carbon dioxide measurement grade

Grade of the end-tidal CO2 (ETCO2) measurements being reported

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 176 - 200 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.