CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1146
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12456 Polysomnography transcutaneous carbon dioxide total sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12409 Pulmonary gas exchange measurement type

The type of gas exchange measurement used on participant/subject

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12261 Biopsy and autopsy inflammatory cell type

Type of inflammatory cells identified

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12911 Echocardiogram right ventricle systolic pressure estimation type

Type of technique used to estimate the right ventricular systolic pressure

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12279 Specimen immunohistochemical stain name

Name of immunohistochemical stain used on tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12765 Electrophysiology short pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12181 Dual X-ray absorptiometry lumbar spine T score

Dual X-ray absorptiometry (DEXA) Lspine T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10751 Echocardiogram tissue doppler mitral annulus E' velocity measurement

Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12464 Polysomnography heart rate non-REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12417 Pulmonary blood gas bicarbonate value

The numeric value of the bicarbonate (HCO3) level in the blood

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10932 Imaging lesion found indicator

Indicator of whether lesions are found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.