CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12326 Respiratory mechanical in-exsufflator pause duration

Value of the pause time setting for the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

 Supplemental Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17958 Cardiovascular Holter exam fastest run tachycardia episode value

Value of the heart rate during the fastest run of a tachycardia episode

 Supplemental Holter Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

 Supplemental Medical History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12697 Electrophysiology motor nerve latency value

The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17943 Spectroscopy geometry matrix in-plane size value

Value of the in-plane matrix size, if applicable for the spectroscopy scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12540 Imaging T2 measurement indicator

Indicator of whether T2 measurement was used

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12334 Respiratory manual percussion session duration

Time of manual percussion use per session

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17891 Gene additional variants unknown significance text

The free-text field about additional variants in other genes of unknown significance

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10725 Echocardiogram left ventricular posterior wall thickness end diastole measurement

Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12705 Electrophysiology sensory nerve velocity measurement

The signal transmission speed measured during the sensory nerve conduction study

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.