CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1076 - 1100 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12632 Spinal muscular atrophy symptom type

Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12905 Echocardiogram left ventricular mass index measurement

Measurement of the left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density, corrected for body surface area obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12240 Biochemical or genetic test performed indicator

Indicator of whether subsequent biochemical or genetic testing was performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12718 Electrophysiology repetitive nerve stimulation study preactivation number

The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12396 Respiratory supplemental oxygen value

Value of the flow rate of supplemental oxygen

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10959 Spectroscopy spectral bandwidth value

Spectral bandwidth, in Hertz per pixel, used for both metabolite and water signal reference data acquisitions

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12354 Respiratory intrapulmonary percussive ventilation or MetaNeb frequency

Frequency of intrapulmonary percussive ventilation or MetaNeb use

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18826 Gastrointestinal therapy feed tube other text

The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12629 Neonatal intensive care unit stay duration

Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12851 Cardiac MRI left ventricle noncompaction position anatomic site

Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12295 Laboratory pathology normal range age match indicator

Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 1076 - 1100 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.