CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 376 - 400 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12901 Echocardiogram right ventricle end systolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12499 Imaging T2 weighted white matter abnormality site type

The type of anatomical site of the white matter abnormality on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12259 Biopsy and autopsy inflammation type

Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12636 Spinal muscular atrophy symptom hip dislocate side indicator

Indicator of the side of the body on which the participant/subject has a dislocated hip

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12909 Echocardiogram right ventricular systolic pressure measurement

Measurement of right ventricular systolic pressure estimate obtained by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12445 Polysomnography blood oxygen saturation drop hour REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during rapid eye movement (REM) sleep time

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

Supplemental Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12722 Electrophysiology repetitive nerve high frequency

Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12364 Respiratory airway clearance medication name

Name of the airway clearance medication used by the participant/subject

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12919 Cardiovascular Holter exam atrial dysrhythmia type

Type of atrial dysrhythmia detected during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12617 Pregnant prior history medical terminate count

Count of prior medical terminations (abortions) that the participant/subject's mother has had

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12847 Cardiac MRI left ventricle mass index measurement

Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

Supplemental Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12324 Respiratory mechanical in-exsufflator inhale duration

Value of the inhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12206 Gastrointestinal therapy medication type

Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10965 Spectroscopy post process residual water signal remove indicator

Indicator whether residual water signal was removed in post processing

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 376 - 400 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.