CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17885 Gastrointestinal therapy other feed tube text

Text identification of unlisted tube type through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12499 Imaging T2 weighted white matter abnormality site type

The type of anatomical site of the white matter abnormality on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12754 Electrophysiology mean circular result

The mean circular result (MCR) measured during autonomic function testing

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10731 Echocardiogram right atrial enlargement status

Status of absence or presence of right atrial enlargement on the echocardiogram

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12347 Respiratory high frequency chest wall oscillation system brand name

Name of the brand of thee high frequency chest wall oscillation system brand of device used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12258 Biopsy and autopsy central cores type

The composition of the central cores

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12635 Spinal muscular atrophy symptom joint type anatomic site

Anatomic site of the selected type of joint-related spinal muscular atrophy (SMA) symptom or sign exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12397 Respiratory support use frequency

Frequency of ventilation device use

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C14964 Sedation used indicator

Whether the participant/subject was administered any sedation

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12762 Electrophysiology quantitative sweat function foot measurement

The amount of sweat collected on the foot

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12178 Dual X-ray absorptiometry hip T score

Dual X-ray absorptiometry (DEXA) Hip T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12355 Respiratory intrapulmonary percussive ventilation or MetaNeb daily detail type

Frequency of use of the intrapulmonary percussive ventilation or MetaNeb device on a daily basis

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10927 Imaging inversion time

The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 301 - 325 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.