CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12226	Specimen source type	Type of specimen collection source	Core	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10616	Clinical event or milestone achieved indicator	Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12286	Tissue specimen section thickness measurement	Measurement in microns of the thickness of the section taken from the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12306	Ulna length measurement	The length of the ulna of the participant/subject	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12315	Pulmonary function forced vital capacity leak indicator	Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18833	Pulmonary function test not done other text	The free-text field related to 'Pulmonary function test not done reason' specifying other text. Reason the pulmonary function test was attempted but not completed	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Core	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C11099	Pulmonary function test type	Type of pulmonary function testing performed	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12784	Variant mutational analysis performed family member indicator	Whether the mutational analysis was performed on a family member	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (EKG) was administered	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12287	Tissue specimen section count	Count of the number of sections from the tissue specimen that were taken and evaluated	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Core	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12307	Ulna length measure tool name	Instrument used to measure ulna length	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C58650	Tissue specimen section thickness not known indicator	Indicator that the tissue specimen thickness is not known	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.