CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12417 Pulmonary blood gas bicarbonate value

The numeric value of the bicarbonate (HCO3) level in the blood

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12418 Pulmonary blood gas base excess value

The numeric value for the amount of base excess or deficit in the blood

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Core Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Core Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17899 Preservation technique not used indicator

Indicates preservation technique used is not known

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12616 Pregnant prior history miscarry count

Count of prior miscarriages (spontaneous abortions) that the participant/subject's mother has had

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12617 Pregnant prior history medical terminate count

Count of prior medical terminations (abortions) that the participant/subject's mother has had

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12614 Pregnant more than once maternal indicator

Indicator of whether the mother of the participant/subject has a history of other pregnancies (both term and not to term) besides the pregnancy with the participant/subject

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10896 Pregnancy test performed indicator

Indicator as to whether or not a pregnancy test was performed on the participant/subject

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 276 - 300 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.