CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1207
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12685 Wheelchair use frequency

Frequency with which the participant/subject uses their wheelchair, if applicable

Supplemental External Devices - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12272 Western Blot result

Result of the assay(s) performed

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12271 Western Blot assay performed name

Name(s) of the assay performed

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01541 Weight measurement

Measurement of participant's/subject's weight

Core Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

Core Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12944 Variant mutational analysis performed indicator

Whether the variant or mutational analysis was performed on the participant/subject

Core Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12784 Variant mutational analysis performed family member indicator

Whether the mutational analysis was performed on a family member

Core Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17896 Variant mutational analysis not performed reason

Why the mutational analysis was not performed

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12306 Ulna length measurement

The length of the ulna of the participant/subject

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12296 Tissue specimen sweat gland innervation evaluate indicator

Indicator of whether sweat gland innervation was evaluated for the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Peripheral Nerves - Biopsies and Autopsies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C58650 Tissue specimen section thickness not known indicator

Indicator that the tissue specimen thickness is not known

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12286 Tissue specimen section thickness measurement

Measurement in microns of the thickness of the section taken from the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12290 Tissue specimen section quantify volume normalize type

Type of method used to normalize the volume of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18832 Tissue specimen section quantify volume normalize other text

The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12289 Tissue specimen section quantify type

Type of quantification used in evaluating the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 1 - 25 of 1207

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.