CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1076 - 1100 of 1146
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12633 Spinal muscular atrophy symptom indicator

Indicator whether the participant/subject exhibits the selected spinal muscular atrophy (SMA) symptom or sign

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12634 Spinal muscular atrophy symptom joint type

Type of joint-related spinal muscular atrophy (SMA) symptom or sign exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12635 Spinal muscular atrophy symptom joint type anatomic site

Anatomic site of the selected type of joint-related spinal muscular atrophy (SMA) symptom or sign exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12632 Spinal muscular atrophy symptom type

Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18868 Surgical history procedure scoliosis other text

The free-text field related to 'Surgical history procedure scoliosis type' specifying other text. Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12674 Surgical history procedure scoliosis type

Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18869 Surgical history procedure tendon release other text

The free-text field related to 'Surgical history procedure tendon release type' specifying other text. Type of surgical procedure the participant/ subject has undergone for tendon release

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12675 Surgical history procedure tendon release type

Type of surgical procedure the participant/ subject has undergone for tendon release

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12677 Surgical history procedure tympanostomy same ear count

Count of times that the participant/subject has undergone tympanostomy tube insertion in the same ear

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17412 Survival of motor neuron 2 (SMN2) protein copy number count

Count of all copies (copy number) of the gene SMN2 in the participant/subject's genotype

Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10500 Symptom onset age value

Age when symptoms first experienced

Supplemental Medical History of SMA - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05404 Symptom onset date and time

Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms

Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C59694 Tachycardia episode unit of measure

Unit of measure for the episode of tachycardia

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 1076 - 1100 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.