CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06062 Pain intensity average past week scale

Scale of the participant's/subject's pain intensity in the past week. A 0 - 10 Numerical Rating Scale (ranging from 0 = "No pain" to a maximum of 10 = "Pain as bad as you can imagine") of average pain intensity for the past week

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06063 Pain onset date

Date (and time, if applicable and known) the particular pain problem started

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06070 Pain interfere daily activity scale

Scale that evaluates to what extent pain has interfered with the participant's daily activities

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06071 Pain interfere mood scale

Scale that evaluates to what extent pain has interfered with the participants mood

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06072 Pain interfere sleep scale

Scale that evaluates to what extent pain has interfered with the participant's sleep

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06073 Pain treatment indicator

Indicator for whether the participant is using or receiving any treatment for the pain experienced

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06309 Sexual issue discussion willingness indicator

Indicator of the participant's willingness to discuss sexual issues

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06310 Sexual problem unrelate spinal cord lesion indicator

Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06312 Sexual dysfunction relate spinal cord lesion indicator

Indicator of whether the participant has a history of or reports personal distress as a result of sexual dysfunction. Sexual dysfunction may be regarding desire, arousal, pain or orgasmic dysfunction

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06313 Psychogenic genital arousal scale

Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06314 Reflex genital arousal scale

Scale for how the female's reflex genital arousal is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06315 Orgasmic function scale

Scale that assesses orgasmic function. Females: Orgasm is the perception of sensation of feeling good through sexual stimulation, of reaching a climax after which the woman feels gratified. May be accompanied by an overall increase and then decrease in muscle tone. The potential is based on history. Males: Orgasm is the perception of sensation of a peak feeling of sexual release, or climax, after which the man feels gratified. It may be accompanied by an overall increase and then decrease in muscle tone and may or may not be accompanied by ejaculation. The potential is based on history

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06317 Psychogenic erection scale

Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06318 Reflex erection scale

A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06319 Ejaculation scale

Scale for how the male participant's ejaculation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C18797 Sexual problem unrelate spinal cord lesion specify text

The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
Displaying 201 - 225 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.