CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1776 - 1800 of 1888

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1720-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19100	C19100	Stabilization and fusion segment level	Level of stabilization and fusion segment in surgical procedure	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07086	C07086	Alcohol Use Disorders Identification Test (AUDIT) - Guilt remorse after drink frequency score	Score for the frequency within the last year with which the subject found himself or herself with feelings or guilt or remorse after drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06428	C06428	Spinal column injury extent type	In the presence of an injury through the spine, this element documents whether there is a single level spinal column injury or if there are multiple levels involved	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C06190	C06190	Defecation past four week average duration range	Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C18797	C18797	Sexual problem unrelate spinal cord lesion specify text	The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06072	C06072	Pain interfere sleep scale	Scale that evaluates to what extent pain has interfered with the participant's sleep	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12628	C12628	Neonatal intensive care unit stay indicator	Indicator whether the participant/subject had to stay in the neonatal intensive care unit (NICU)	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19494	C19494	Spinal cord injury upper extremity function complications status	The status of complications to upper extremity function like pain, spasms, contractures, edema, etc	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C04809	C04809	Hospital discharge destination type	Type of destination on completion of stabilization/evaluation in hospital	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14706	C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19495	C19495	Spinal cord injury upper extremity hand reconstructive surgery status	Indicate whether upper extremity/hand reconstructive surgery was performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06072	C06072	Pain interfere sleep scale	Scale that evaluates to what extent pain has interfered with the participant's sleep	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2068-C12629	C12629	Neonatal intensive care unit stay duration	Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental-Highly Recommended	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C11066	C11066	Pregnancy or delivery risk factor type	Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19495	C19495	Spinal cord injury upper extremity hand reconstructive surgery status	Indicate whether upper extremity/hand reconstructive surgery was performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14699	C14699	Berg Balance Scale (BBS) - unsupport feet together scale	The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1776 - 1800 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.