CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1676 - 1700 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21662 Follow-up care type

Indicates the type of follow-up care the participant/ subject received

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C58643 Electrophysiology facilitation type

Type of facilitation or reinforcement employed in electrophysiology testing

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C15920 Quantitative sensory testing test equipment text

Description of equipment used for testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06010 ASIA Impairment Scale

Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

 Supplemental Physical Exam False Spinal Cord Injury Spinal Cord Injury
C19089 Neural element direct decompression indicator

Indicator of direct decompression of neural elements

 Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C07084 Alcohol Use Disorders Identification Test (AUDIT) - Fail normal activity drink frequency score

The frequency with which the subject found himself or herself unable to perform normal tasks due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C06426 Spinal cord injury type

The mechanism of spinal cord injury

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06318 Reflex erection scale

A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06070 Pain interfere daily activity scale

Scale that evaluates to what extent pain has interfered with the participant's daily activities

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06241 Anal tone examination result

The result of digital examination of anal tone.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 Supplemental General Core False Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C15935 Exam room temperature measurement

The exam room temperature at the time of testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19386 Spine traumatic herniated nucleus polposus anatomic level anatomic site

The anatomic site level of traumatic herniated nuclear polposus in the spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C55478 Spinal cord dysfunction non traumatic other specify text

The free text field to describe the other type of non-traumatic spinal cord dysfunction

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 Supplemental Other Investigational Treatments False Spinal Cord Injury Spinal Cord Injury
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19725 Laboratory procedure two hour glucose measurement

Measurement of the amount of glucose in the participant's blood 2 hours after a 75-gram glucose drink has been ingested

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 1676 - 1700 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.