CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 1888

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1724-C19163	C19163	Acute care unit admission time	The time at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19461	C19461	Acute spinal cord injury feature type	Type of acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19463	C19463	Acute spinal cord injury features integer range value	Value on the integer range for acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C18161	C18161	Adrenal disease specify name	Specifies the name of adrenal disease diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02310	C02310	Adverse event CTCAE term name	Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant experienced any adverse events during the study	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02311	C02311	Adverse event MedDRA lowest level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60387	C60387	Adverse event ongoing indicator	Indicator of whether the adverse event experienced by the participant is ongoing	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60388	C60388	Adverse event severity intensity CDISC grade	Grade of severity or intensity of the adverse event according to the Clinical Data Interchange Standards Consortium (CDISC) terminologies	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60386	C60386	Adverse event site aware date and time	Date (and time, if applicable and known) on which the site first became aware of the adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60389	C60389	Adverse event study intervention action take type other text	The free-text field related to 'Adverse event study intervention action take type', specifying other text. Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1737-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07081	C07081	Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score	Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07087	C07087	Alcohol Use Disorders Identification Test (AUDIT) - Cannot remember night before frequency score	Score for the frequency within the last year with which the subject was unable to remember what happened the previous night due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07083	C07083	Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score	Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07080	C07080	Alcohol Use Disorders Identification Test (AUDIT) - Drink contain alcohol frequency score	Score for the frequency with which the subject consumes alcoholic drinks, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.