CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22280 Thyroid disease prior diagnosis other text

The free-text field to specify other prior diagnosis for thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19123 Upper extremity surgery right other performed indicator

The indicator for other surgical procedure on the right side

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19371 Imaging pre-existing hardware surgery lower limit instrumentation anatomic site

The lower limit instrumentation anatomic site for pre-existing hardware surgeries

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C18883 Orthosis other text

The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19400 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count

Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C00202 Education school participation status

Status of participant/subject's current attendance at school

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C22806 Pain most intense day time period type

Time of day the participant's pain is most intense

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06002 Inpatient treatment total day number

Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C17420 Urinary culture species text

Text to name a bacteria species in urine culture sample

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22293 Thyroid disease prior thyroid nodule diagnosis date

Date when prior thyroid nodule was diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Exam Spinal Cord Injury Spinal Cord Injury
C06198 Perianal problem type

Type of problem with the anus found in the perianal space

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06436 Neuro-Musculoskeletal condition anatomic site

Anatomic site of the neuro-musculoskeletal condition experienced or diagnosed

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06147 Bladder diverticulum indicator

Indicator of whether there is bladder diverticulum. This means diverticula of any size within the bladder or bladder neck were found

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21651 Upper extremity orthosis type

Type of upper extremity orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs) the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19410 Brain Motor Control Assessment (BMCA) - Test anatomic site

Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19257 Residence area type

Type describing the participant's/subject's current location of residence

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C05450 Abbreviated Injury Scale body region score

Score for the body region measured by Abbreviated Injury Scale

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.