CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0818-C06009	C06009	SCI Classification motor neurological level right result	Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Supplemental	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06310	C06310	Sexual problem unrelate spinal cord lesion indicator	Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06224	C06224	Bowel care position past three months type	The indicator of whether the bowel care position was used within the past three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22190	C22190	Laboratory procedure two hour insulin blood value	This variable assesses insulin reserve and peripheral insulin sensitivity	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18787	C18787	Defecation method bowel care procedure used past four week supplementary other text	The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19329	C19329	Spine recording-reference electrode configuration type	Type of electrode configuration of spine recording-reference	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19389	C19389	Spine ligamentous injury rupture status	Status of ligamentous injury or rupture in spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06253	C06253	Heart rate status	Findings after taking a participant's pulse during the examination	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C15921	C15921	Quantitative sensory testing maximum stimulation intensity value	Measure of the maximum level of stimulation used during the testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06316	C06316	Menstruation scale	Scale for how the female participant's menstruation is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19478	C19478	Spinal cord injury performance rate scale	The performance or satisfaction rating after spinal cord injuiry	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06319	C06319	Ejaculation scale	Scale for how the male participant's ejaculation is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06239	C06239	Constipation lifestyle alteration past three months scale	The scale that assesses lifestyle alteration due to constipation within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22235	C22235	Laboratory procedure N telopeptide plasma serum value	Value of N telopeptide plasma serum taken in the laboratory procedure	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C22702	C22702	Institutional review board notification indicator	Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53031	C53031	Digital rectal stimulation evacuation anorectum past four week average frequency	The indicator related to digital rectal stimulation or evacuation of the anorectum	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19350	C19350	Pulse count	Number of pulses	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.