CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09745 Food Frequency Questionnaire - (FFQ)-peas lima beans indicator

Average total amount of peas or lima beans the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19183 Vasopressor use indicator

Indicator for use of vasopressor

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09793 Food Frequency Questionnaire - (FFQ)-white rice indicator

Average total amount of white rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19430 Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator

Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09753 Food Frequency Questionnaire - (FFQ)-kale mustard chard greens indicator

Average total amount of kale, mustard. Or chard greens the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C21670 Medication history date

Date the medication history was taken

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19212 Degenerative spine disorder surgery date

Date of surgery caused by degenerative spine disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C09801 Food Frequency Questionnaire - (FFQ)-crackers regular low fat indicator

Average total amount of regular or low fat crackers the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17229 Swallowing Disturbance Questionnaire (SwDQ) - chew food dribble from mouth score

Score for how frequent the participant/subject chews up food dribble from the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09761 Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator

Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C18680 Food Frequency Questionnaire - (FFQ)-specific brand other text

The free-text field related to 'Food Frequency Questionnaire - (FFQ)-specific brand type' specifying other text. Specific brand of multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C17237 Swallowing Disturbance Questionnaire (SwDQ) - change voice after eat score

Score for how frequent the participant/subject experiences a change in voice, such as hoarseness or reduced, immediately after eating or drinking, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09769 Food Frequency Questionnaire - (FFQ)-salami bologna other processed meat sandwiches indicator

Average amount of salami, bologna, or other processed meat sandwiches the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19256 Study protocol name

Name of study protocol

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09729 Food Frequency Questionnaire - (FFQ)-blueberries fresh frozen canned indicator

Average total amount of blueberries, fresh, frozen, or canned the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09777 Food Frequency Questionnaire - (FFQ)-liver chicken turkey indicator

Average total amount of liver: chicken or turkey the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19402 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting muscle count

Number of muscles examined in long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09737 Food Frequency Questionnaire - (FFQ)-string beans indicator

Average total amount of string beans the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C06196 Oral laxative drops liquid type

Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
Displaying 201 - 225 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.