CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1851 - 1875 of 1886
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C19491 Spinal cord injury upper extremity reach grasp basic assessment status

The status of the ability to reach and grasp as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C04809 Hospital discharge destination type

Type of destination on completion of stabilization/evaluation in hospital

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19499 Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19498 Spinal cord injury upper extremity hand reconstructive surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C06073 Pain treatment indicator

Indicator for whether the participant is using or receiving any treatment for the pain experienced

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C21621 Twin sibling vital status

The vital status of twin of the participant/subject

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19491 Spinal cord injury upper extremity reach grasp basic assessment status

The status of the ability to reach and grasp as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19499 Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C12625 Respiratory intervention neonatal problem type

Type of intervention for breathing problems at or soon after the participant/subject's delivery

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
Displaying 1851 - 1875 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.