CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1801 - 1825 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19178 Pre spinal cord lesion pulmonary condition other text

The free-text field related to "Pre spinal cord lesion pulmonary condition type" specifying other text. Type of pulmonary conditions present before spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09788 Food Frequency Questionnaire - (FFQ)-rye pumpernickel bread indicator

Average total amount of rye or pumpernickel bread the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09748 Food Frequency Questionnaire - (FFQ)-dark orange winter squash indicator

Average total amount of dark orange (winter) squash the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19187 Medication affecting bowel function constipating agent other text

The free-text field related to 'Bowel function medication indicator' specifying other text. Indicator for medication affecting bowel function/constipating agents (within the last four weeks)

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19406 Brain Motor Control Assessment (BMCA) - Magnitude average value

Average magnitude value over all trials as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Spinal Cord Injury Spinal Cord Injury
C06324 SCI Classification motor exam anatomic site

Muscle (and associated spinal cord level) evaluated during the motor examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Spinal Cord Injury Spinal Cord Injury
C06420 SCI Classification motor strength lower limb single side score

Score of motor strength for the lower limb on the specific side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C18386 Less three years age value

Number of months from zero to thirty-six months of age

Core Demographics Spinal Cord Injury Spinal Cord Injury
C06325 SCI Classification light touch anatomic site grade

Grade that documents the ability to sense light touch on the specific spinal cord level and side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06414 Spinal cord injury etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude

Core History of Injury Spinal Cord Injury Spinal Cord Injury
C06347 SCI Classification motor strength lower limb total score

Total score of motor strength for the lower right and left limbs

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Spinal Cord Injury Spinal Cord Injury
C06325 SCI Classification light touch anatomic site grade

Grade that documents the ability to sense light touch on the specific spinal cord level and side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06421 SCI Classification light touch single side score

Score of sensation of light touch for the specific side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Spinal Cord Injury Spinal Cord Injury
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06326 SCI Classification sensory exam anatomic site

Spinal cord level evaluated during the sensory examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06348 SCI Classification anal sensation indicator

Indicator of whether or not the person has any anal sensation

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
Displaying 1801 - 1825 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.