CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06004 Ventilatory assistance utilization frequency indicator

Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C07090 Alcohol Use Disorders Identification Test (AUDIT) - Total score

The subject/participant's AUDIT total score (0-40), as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C19465 SCI chronic finding type

Type of chronic finding for spinal cord injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19310 Latency average value

The average value of latency

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19378 Quantitative Sensory Testing sensation test type

The type of sensation evaluated in Quantitative Sensory Testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19253 Imaging pre-existing hardware surgery indicator

Indicator for pre-existing hardware or surgery

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06115 Force vital capacity measurement

Forced vital capacity (FVC) value measured in liters using simple spirometry. FVC is defined as the total volume of air that a person can forcibly exhale during a maximal expiratory effort

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06057 Pain different problem number

Number of different pain problems an individual perceives that he or she has experienced during the last seven days including today. A "pain problem" is defined by the person himself as a pain that has a specific character

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C19178 Pre spinal cord lesion pulmonary condition other text

The free-text field related to "Pre spinal cord lesion pulmonary condition type" specifying other text. Type of pulmonary conditions present before spinal cord lesion

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C21628 Pediatric Glasgow coma scale date and time

Date (and time, if known) of Pediatric Glasgow Coma Scale assessment

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19099 Upper extremity/hand reconstructive surgery indicator

Indicator for surgery on upper extremity/hand

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06193 Diaper pad plug use past four week indicator

Indicator for need to wear a diaper, pad or plug within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18608 Kidney left excretory function measurement

The percentage of excretory function for the left kidney. The combined excretory function for the two kidneys is 100 %

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14653 Functional Disability Inventory (FDI) - child form run football field scale

The scale of the child's or adolescent's ability to run the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C22812 Injury below level dynamic light touch allodynia intensity scale

The scale related to intensity of allodynia for dynamic light touch below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18183 Wheelchair driven subject indicator

Indicator for whether the power wheelchair is driven by the participant/subject

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06259 Bladder function detrusor function type

Type of magnitude of the detrusor function on the participant/subject

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19405 Brain Motor Control Assessment (BMCA) - Magnitude value

Magnitude recorded as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.