CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1726 - 1750 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06191 Defecation past four week average frequency

Average frequency of defecation within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22823 Injury below level cold other text

Free-text field to indicate what other type of response the participant experiences from cold below the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19426 Brain Motor Control Assessment (BMCA) - Fast as possible antagonist burst presence indicator

Indicator for the presence of an antagonist burst in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22330 Laboratory procedure gonadal function free testosterone serum value

The value related to concentration of free testosterone in serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19502 Tobacco cigarettes smoke daily average value

Tobacco cigarettes smoked daily average number

 Supplemental Alcohol and Tobacco Use False Spinal Cord Injury Spinal Cord Injury
C14202 Emergency Medical Services (EMS) dispatch priority type

For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19118 Upper extremity surgery left osteotomy wrist performed indicator

The indicator for the surgical procedure of the restoration of the left wrist in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C18732 Language primary other text

The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19088 Open reduction indicator

Indicator for open reduction

 Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19203 Pre-existing congenital deformity specify diagnosis name

Specifies name of pre-existing congenital deformity of the spine and spinal cord

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18780 Urinary incontinence collect appliance other text

The free-text field related to 'Urinary incontinence collect appliance type' specifying other text. Type or types of collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

 Supplemental Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C17473 Cardiovascular history cardiac surgery date

Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06373 Skin thermoregulation pressure ulcer large opening diameter measurement

Measurement of the largest opening diameter of the pressure ulcer in mm

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C07090 Alcohol Use Disorders Identification Test (AUDIT) - Total score

The subject/participant's AUDIT total score (0-40), as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C18141 Defecation method bowel care procedure other text

Text describing the other defecation method and bowel care procedure used within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22831 Pain past treatment oral topical medication type

The type of past oral and topical medication the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06152 Imaging study urinary tract global result type

The type of results related to urinary tract from imaging of two kidneys

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C22344 Laboratory procedure posterior pituitary function fluid deprivation desmopressin acetate test result

Result of the fluid deprivation test with DDAVP

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C10630 Diary day near falls experienced number

Number of near falls the participant/subject experienced on a particular day

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
Displaying 1726 - 1750 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.