CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2604-C06313	C06313	Psychogenic genital arousal scale	Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06230	C06230	Bowel care facilitators other text	The text of maneuver used to facilitate bowel care	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22192	C22192	Laboratory procedure calcium plasma serum value	This variable documents abnormality in circulating total calcium level	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C18701	C18701	Imaging modality type other text	The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C19188	C19188	Oral laxative medication indicator	Indicator for oral laxative medication use (within the last four weeks)	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19343	C19343	Sensory evoked potential stimulation spine anatomic site	The anatomic site in the spine related to assessing somatosensory system functioning	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12707	C12707	Electrophysiology H-reflex latency left value	The H-reflex duration of latency for the left side of the body	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19391	C19391	Spine degenerative feature indicator	Indicator for developmental feature in spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06259	C06259	Bladder function detrusor function type	Type of magnitude of the detrusor function on the participant/subject	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C15928	C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19146	C19146	Activity frequency other text	The free text field related to "Activity frequency" specifying other text. The frequency of the activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19480	C19480	Spinal cord injury dressing lower body status	The status related to spinal cord injur and dressing lower body	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06105	C06105	Pulmonary complication or condition after spinal cord lesion last year indicator	Indicator of whether the specific pulmonary complication or condition occurred after the spinal cord lesion and within the last year	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06241	C06241	Anal tone examination result	The result of digital examination of anal tone.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22242	C22242	Laboratory procedure C telopeptide plasma serum value	Value of C telopeptide plasma serum gathered within the laboratory procedure	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0364-C07442	C07442	Satisfaction with Life Scale (SWLS) - Life close ideal score	Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS)	Supplemental	Satisfaction with Life Scale	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53041	C53041	Flatus incontinence indicator	The indicator related to flatus incontinence within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12733	C12733	Needle electromyography motor unit action potential complexity percent value	The complexity of the motor unit action potential measured during needle electromyography	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19453	C19453	Spine sagittal canal diameter caudal injury measurement	Measurement of sagittal canal diameter caudal to injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06416	C06416	Colonic transit left side measurement	The transit time of the descending colon (including the splenic flexure) and the rectosigmoid assessed by means of radioopaque markers and measured in hours.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 151 - 175 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.