CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12701 Electrophysiology motor nerve F-wave minimum latency value

The length of time needed for the impulse to travel from the site, to the spine, and back to the site measured during the motor nerve conduction study

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19385 Spine vertebral fracture lower level anatomic site

The anatomic site related to vertebrate in the lower level with fracture

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C06163 Striated urethral sphincter during voiding status

Status of the striated urethral sphincter during voiding

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C15910 Assessment date and time

The date of participant's injury

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19138 Rehabilitation services received other text

The free text field related to "Rehabilitation services received type" specifying other text. The type of rehabilitation service

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C06312 Sexual dysfunction relate spinal cord lesion indicator

Indicator of whether the participant has a history of or reports personal distress as a result of sexual dysfunction. Sexual dysfunction may be regarding desire, arousal, pain or orgasmic dysfunction

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06413 Spinal surgery indicator

Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column

Supplemental International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06315 Orgasmic function scale

Scale that assesses orgasmic function. Females: Orgasm is the perception of sensation of feeling good through sexual stimulation, of reaching a climax after which the woman feels gratified. May be accompanied by an overall increase and then decrease in muscle tone. The potential is based on history. Males: Orgasm is the perception of sensation of a peak feeling of sexual release, or climax, after which the man feels gratified. It may be accompanied by an overall increase and then decrease in muscle tone and may or may not be accompanied by ejaculation. The potential is based on history

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06235 Bowel care initiation stool out past three months average duration

The average time duration in minutes from initiation of bowel care to first stool coming out within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22194 Laboratory procedure calcium urine value

This variable documents renal excretion of calcium

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19083 Non-surgical bed rest external immobilization indicator

The indicator related to non-surgical bed rest and external immobilization

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19345 Temperature peak measurement value

Measurement of the participant's/subject's body peak temperature

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C12710 Electrophysiology assessment date and time

Date the particular electrophysiology study was performed

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19393 Spine degenerative abnormality lower limit level anatomic site

The anatomic site level of spine related to the degenerative features of abnormality

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C21651 Upper extremity orthosis type

Type of upper extremity orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs) the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06261 Bladder function urethral function type

Type of urethral function of the participant/subject during voiding

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C15932 Quantitative sensory testing stimulus rest period duration

Duration between stimulus rest periods/intertrial intervals

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C06360 Endocrine metabolic history after spinal cord lesion last year text

Endocrine and metabolic complications or conditions that may have occurred after the spinal cord lesion and within the last year

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19148 Individual group indicator

Indicator for a group or an individual

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.