CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19483 Volunteer work hour week count

The number of hours per week in volunteer work

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06103 Tobacco smoke quit date

Date (and time, if applicable and known) the participant/subject quit smoking

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22319 Laboratory procedure gonadal function men testis size status

The type related to size of the testis

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18798 Heterotopic ossification detection method other text

The free-text field related to 'Heterotopic ossification detection method type' specifying other text. Type of method used to document the heterotopic ossification

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06314 Reflex genital arousal scale

Scale for how the female's reflex genital arousal is affected by the spinal cord injury

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C19353 Sensory evoked potential stimulation threshold assessment type

Type of stimulation threshold assessed in sensory evoked potential testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C06292 Compression device type worn during examination indicator

Indicator of whether the participant/subject wore the particular compression device during the time of evaluation

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C07083 Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score

Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C19454 Spine sagittal cord diameter rostral to injury measurement

Measurement of sagittal cord diameter rostral to injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C18118 Clearance date

Clearance date

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19030 Quantitative sensory testing test methodology other text

The free-text field related to 'Quantitative sensory testing test methodology type' specifying other text. Type of methodology used for QST imaging

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Exam Spinal Cord Injury Spinal Cord Injury
C21637 Fall details footwear type

Type of footwear the participant/subject was wearing when the fall recorded in the Falls Diary occurred

Supplemental Falls Diary Spinal Cord Injury Spinal Cord Injury
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C22336 Laboratory procedure anterior pituitary function leuteinizing hormone plasma value

The value related to concentration of leuteinizing hormone (LH) in the plasma

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C05453 Hypotensive episode indicator

Indicator of hypotensive episode. In adults, hypotensive episode is defined as systolic blood pressure

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06212 Bowel function SCI data constipation duration

The duration of participant's/subject's constipation.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06461 Non traumatic spinal cord injury etiology classification axis 1 level 2 category

The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C55578 Sexual orientation type

Self-reported sexual orientation of the participant/subject

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06462 Non traumatic spinal cord injury onset type

The type of onset timeframe over which the non-traumatic spinal cord injury developed

Supplemental History of Injury Spinal Cord Injury Spinal Cord Injury
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22244 Laboratory procedure osteocalcin plasma serum value

This variable documents the level of bone formation

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.