CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1888
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C19498 Spinal cord injury upper extremity hand reconstructive surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C19416 Brain Motor Control Assessment (BMCA) - Response present indicator

Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19259 Occupation primary other status text

The free-text field to capture other status indicating the participant's/subject's current primary occupational status

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C19096 Surgery performed date

Date of last surgical intervention

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C05453 Hypotensive episode indicator

Indicator of hypotensive episode. In adults, hypotensive episode is defined as systolic blood pressure

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C22816 Injury below pinprick response type

The type of response related to pinprick below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C12735 Needle electromyography motor unit action potential recruitment type

The recruitment of the motor unit action potential measure during needle electromyography

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19341 Laboratory procedure creatinine clearance result value

Quantitative results of the laboratory test for creatinine clearance in mL/(min * 1.73 m?)

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C19481 Spinal cord injury feeding ability status

The status for feeding ability and spinal cord injury

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19162 Acute care unit admission date

The date at which participant was admitted to acute care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22314 Laboratory procedure adrenal function fasting cortisol serum value

The value related to concentration of cortisol tested between 6 and 8 am, following a fast

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06455 Musculoskeletal challenge interfere activity scale

Scale for how the musculoskeletal challenges interfere with the participant's daily activities of daily livings including transfers, walking, dressing, and showers

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06312 Sexual dysfunction relate spinal cord lesion indicator

Indicator of whether the participant has a history of or reports personal distress as a result of sexual dysfunction. Sexual dysfunction may be regarding desire, arousal, pain or orgasmic dysfunction

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06290 Cardiovascular function after last three month indicator

Indicator of whether the type of cardiovascular function occurred within three months after the spinal cord lesion

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18116 Renography date

Date Renography was performed

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19430 Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator

Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C21635 Fall record date and time

Date and time for each fall recorded in the falls diary by the participant/subject

Supplemental Falls Diary Spinal Cord Injury Spinal Cord Injury
Displaying 101 - 125 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.