CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1888
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06320 SCI Classification motor strength upper limb total score

Total score of motor strength for the upper right and left limbs

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06331 SCI Classification pin prick anatomic site grade

Grade of the ability to sense a pin prick on the specific spinal cord level and side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06419 SCI Classification motor strength upper limb single side score

Score of motor strength for the upper limb on the specific side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Spinal Cord Injury Spinal Cord Injury
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09814 Food Frequency Questionnaire - (FFQ)-herbal tea decaffeinated tea indicator

Average total amount of herbal tea or decaffeinated tea the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09649 Food Frequency Questionnaire - (FFQ)-multi-vitamins taken week value

Amount of multivitamins subject takes per week, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C11908 Modified Ashworth Scale for Grading Spasticity muscle score

Measurement of muscle spasticity

Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09774 Food Frequency Questionnaire - (FFQ)-pork main dish indicator

Average total amount of pork a main dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing

Exploratory Demographics Spinal Cord Injury Spinal Cord Injury
C19208 Pre-existing degenerative spine disorders specify diagnosis name

Specifies name of pre-existing degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09822 Food Frequency Questionnaire - (FFQ)-candy without chocolate indicator

Average total amount of candy without chocolate the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09657 Food Frequency Questionnaire - (FFQ)-beta carotene daily dose

Dose per day of beta carotene, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09782 Food Frequency Questionnaire - (FFQ)-other fish indicator

Average total amount of other fish e.g., cod, haddock, halibut the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19216 Systemic neuro-degenerative disorder surgery caused description

Description of surgery caused by systemic neuro-degenerative disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C08533 36-item Short Form Health Survey (SF-36) - Sick easier score

Score of how true or false surveyee perceived the statement: I seem to get sick a little easier than other people, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09830 Food Frequency Questionnaire - (FFQ)-home baked cookies indicator

Average total amount of home baked cookies the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09665 Food Frequency Questionnaire - (FFQ)-vitamin D indicator

Vitamin D indicator, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09790 Food Frequency Questionnaire - (FFQ)-bagels English muffins rolls indicator

Average total amount of bagels, english muffins, or rolls the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18147 Laboratory procedure LDL cholesterol measurement

Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09673 Food Frequency Questionnaire - (FFQ)-selenium daily dose

Dose per day of Selenium, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.