CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06323 SCI Classification motor zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06336 SCI Classification motor zone of partial preservation left result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the left side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Spinal Cord Injury Spinal Cord Injury
C17233 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score

Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09765 Food Frequency Questionnaire - (FFQ)-other chicken turkey skin indicator

Average total amount of other chicken or turkey, with skin the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09725 Food Frequency Questionnaire - (FFQ)-grapefruit indicator

Average total amount of grapefruit the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C11907 Modified Ashworth Scale for Grading Spasticity muscle tested name

Name of Muscle Tested

Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09773 Food Frequency Questionnaire - (FFQ)-beef pork lamb sandwich mixed dish indicator

Average total amount of beef, pork, or lamb as a sandwich or mixed dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19398 Brain Motor Control Assessment (BMCA) - Upper limb relaxation silence indicator

Indicator for silence in assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09733 Food Frequency Questionnaire - (FFQ)-tomato V8 juice indicator

Average total amount of tomato or V8 juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09781 Food Frequency Questionnaire - (FFQ)-dark meat fish indicator

Average total amount of fish dark meat the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19406 Brain Motor Control Assessment (BMCA) - Magnitude average value

Average magnitude value over all trials as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09741 Food Frequency Questionnaire - (FFQ)-Brussels sprouts indicator

Average total amount of brusselsprouts the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C06466 Non traumatic spinal cord injury etiology axis 1 level 5 category

The category of level 5 of axis 1 to classify the cause of non-traumatic spinal cord injury

Exploratory History of Injury Spinal Cord Injury Spinal Cord Injury
C19179 Pre spinal cord lesion endocrine metabolic condition diagnosed type

Type of endocrine & metabolic condition diagnosed before spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09789 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator-whole wheat oatmeal other whole grain bread indicator

Average total amount of whole wheat, oatmeal, or other whole grain bread the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19424 Brain Motor Control Assessment (BMCA) - Fast as possible onset time

Time of onset recorded in the Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09749 Food Frequency Questionnaire - (FFQ)-eggplant zucchini other summer squash indicator

Average total amount of eggplant, zucchini or other summer squash the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19208 Pre-existing degenerative spine disorders specify diagnosis name

Specifies name of pre-existing degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C01706 Lab test result text

Result of the laboratory test

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.