CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C07439 Patient Health Questionnaire (PHQ) - Better dead thought score

Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Demographics Spinal Cord Injury Spinal Cord Injury
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C17983 Caesarean delivery timing type

Type of timing conditions under which Caesarean delivery was decided upon

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C19096 Surgery performed date

Date of last surgical intervention

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06058 Pain problem grade

Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C04809 Hospital discharge destination type

Type of destination on completion of stabilization/evaluation in hospital

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Spinal Cord Injury Spinal Cord Injury
C19497 Spinal cord injury upper extremity hand reconstructive surgery performed indicator

The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06072 Pain interfere sleep scale

Scale that evaluates to what extent pain has interfered with the participant's sleep

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19498 Spinal cord injury upper extremity hand reconstructive surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C14693 Berg Balance Scale (BBS) - sit stand scale

The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C14701 Berg Balance Scale (BBS) - retrieve floor object scale

The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19498 Spinal cord injury upper extremity hand reconstructive surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 51 - 75 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.