CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 476 - 500 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19121 Upper extremity surgery right implantable FES performed indicator

The indicator for surgical procedure on the right side with an Implantable FES

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19258 Occupation primary status

The status indicating the participant's/subject's current primary occupational status

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C19100 Stabilization and fusion segment level

Level of stabilization and fusion segment in surgical procedure

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19353 Sensory evoked potential stimulation threshold assessment type

Type of stimulation threshold assessed in sensory evoked potential testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C06012 Urinary tract impairment unrelate injury indicator

Indicator of urinary tract impairment unrelated to spinal cord lesion

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18175 Cardiovascular function after last three month date

Date (and time, if applicable and known) on which the cardiovascular function occurred within three months after the spinal cord lesion.

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19080 Spinal intervention surgical procedure performance nonparticipating facility indicator

Indicates performance of a spinal intervention or a surgical procedure at a nonparticipating facility

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C53075 Neurogenic bowel dysfunction total score

The total score for Neurogenic Bowel Dysfunction used for assessment of bowel symptoms in individuals with SCI

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19456 Spine sagittal cord diameter injury measurement

Measurement of sagittal cord diameter injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C18130 Renography urinary tract other finding text

The free-text field for other findings from the urinary tract renography study

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C19224 Outcome type

Type of outcome

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C02497 Imaging scanner model name

Name of model of imaging scanner

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C18150 Thyroid disease indicator

Indicator for thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21662 Follow-up care type

Indicates the type of follow-up care the participant/ subject received

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06116 Force expiratory volume measurement

Forced expiratory volume in one second (FEV1) value measured in liters using simple spirometry. FEV1 is the volume expired in the first second of the forced vital capacity (FVC) maneuver

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21616 Bowel care initiation stool out past three month average indicator

The indicator related to average time duration in minutes from initiation of bowel care to first stool coming out within the last three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22277 Thyroid disease assessment date

Date when information was collected for prior thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06003 Injury associate spinal cord injury indicator

Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
Displaying 476 - 500 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.