CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06023 Urinary tract drug type

Type of drug, systemic or intravesical, for the urinary tract used

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C07084 Alcohol Use Disorders Identification Test (AUDIT) - Fail normal activity drink frequency score

The frequency with which the subject found himself or herself unable to perform normal tasks due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C22827 Pain past treatment passive stimulation therapy type

The type of past passive and stimulation therapy treatment the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19406 Brain Motor Control Assessment (BMCA) - Magnitude average value

Average magnitude value over all trials as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C22338 Laboratory procedure anterior pituitary function follicular stimulating hormone plasma value

The value related to concentration of follicular stimulating hormonr (FSH) in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C05433 Protective devices use indicator

Indicator of protective devices used by participant/subject (e.g., helmet, car seat, seat belt, etc.)

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19108 Upper extremity surgery left soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of left tendon/muscle releases or lengthenings in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C00024 Language primary ISO code

Code (ISO 639-2) for the language the participant/subject speaks most often

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C06448 Spasticity spasm treat last four week indicator

Indicator of whether the person with SCI has received any kind of treatment for spasticity/spasms within the last four weeks

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19329 Spine recording-reference electrode configuration type

Type of electrode configuration of spine recording-reference

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C12705 Electrophysiology sensory nerve velocity measurement

The signal transmission speed measured during the sensory nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19457 Spine transverse cord diameter injury measurement

Measurement of transverse cord diameter injury

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Supplemental Medical History False Spinal Cord Injury Spinal Cord Injury
C06253 Heart rate status

Findings after taking a participant's pulse during the examination

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C15921 Quantitative sensory testing maximum stimulation intensity value

Measure of the maximum level of stimulation used during the testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19143 Activity other text

The free text field related to "Activity types" specifying other text. The type of activity

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19478 Spinal cord injury performance rate scale

The performance or satisfaction rating after spinal cord injuiry

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 476 - 500 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.