CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 476 - 500 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19469 Brain Motor Control Assessment (BMCA) - Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09757 Food Frequency Questionnaire - (FFQ)-peppers indicator

Average total amount of peppers: green, yellow, or red the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19216 Systemic neuro-degenerative disorder surgery caused description

Description of surgery caused by systemic neuro-degenerative disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C17888 Lab specimen collection time

Time the specimen was collected

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C17233 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score

Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09765 Food Frequency Questionnaire - (FFQ)-other chicken turkey skin indicator

Average total amount of other chicken or turkey, with skin the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09725 Food Frequency Questionnaire - (FFQ)-grapefruit indicator

Average total amount of grapefruit the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09852 Food Frequency Questionnaire - (FFQ)-sugar teaspoons indicator

Number of teaspoons of sugar the subject adds to his or her beverages and food each day, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09687 Food Frequency Questionnaire - (FFQ)-potassium indicator

Potassium indicator, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08515 36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator

Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09812 Food Frequency Questionnaire - (FFQ)-liquor indicator

Average total amount of liquor the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18151 Thyroid disease specify name

Specifies the name of thyroid disease diagnosed

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Exploratory Family History Spinal Cord Injury Spinal Cord Injury
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09860 Food Frequency Questionnaire - (FFQ)-olive oil added food indicator

Average total amount for olive oil the subject added to food or bread this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09695 Food Frequency Questionnaire - (FFQ)-soy milk consume total amount value

Average total amount of soy milk the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08523 36-item Short Form Health Survey (SF-36) - Times pep score

Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09820 Food Frequency Questionnaire - (FFQ)-dark chocolate indicator

Average total amount of dark chocolate the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09655 Food Frequency Questionnaire - (FFQ)-vitamin A duration

Duration of vitamin A intake, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C20366 Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale

The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09868 Food Frequency Questionnaire - (FFQ)-other foods not previously eaten indicator

The servings per week of each of the other foods not mentioned above the subject usually eats at least once per week, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09703 Food Frequency Questionnaire - (FFQ)-cottage ricotta cheese indicator

Average total amount of cottage or ricotta cheese the subject usually had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08531 36-item Short Form Health Survey (SF-36) - Times tired score

Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
Displaying 476 - 500 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.