CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06264 Bladder function bladder capacity value

Value of the bladder capacity of participant/subject during cystometry

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22279 Thyroid disease prior diagnosis type

Type of prior diagnosis for thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06173 Gastrointestinal anal sphincter dysfunction unrelate SCI indicator

Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19307 Spine subluxation translation level measurement

Measure of subluxation from posterior aspect of vertebral body relative to nearest adjacent body (in mm)

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C18198 Ankle foot orthosis use type

Type of use for ankle-foot orthosis

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19399 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic event count

Number of events in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22805 Pain average duration

How long the participant's pain usually lasts

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18134 Cystogram result type

The type as related to the cystrogram result

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C17419 Urinary culture status

Status of urine culture result

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22288 Thyroid disease prior thyroid nodule diagnosis type

Type of prior thyroid nodule diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06196 Oral laxative drops liquid type

Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06435 Neuro-Musculoskeletal condition type

Type of neuro-musculoskeletal condition experienced or diagnosed

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06145 Vesicouretic reflux laterality type

The laterality type related to reflux to the ureter observed at the right and/or the left side

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C21650 Orthosis cane type

Type of cane the participant/subject uses

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

 Supplemental Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19408 Brain Motor Control Assessment (BMCA) - Muscle count

Number of muscles examined as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
Displaying 376 - 400 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.