CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09761 Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator

Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18680 Food Frequency Questionnaire - (FFQ)-specific brand other text

The free-text field related to 'Food Frequency Questionnaire - (FFQ)-specific brand type' specifying other text. Specific brand of multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

Exploratory Demographics Spinal Cord Injury Spinal Cord Injury
C17237 Swallowing Disturbance Questionnaire (SwDQ) - change voice after eat score

Score for how frequent the participant/subject experiences a change in voice, such as hoarseness or reduced, immediately after eating or drinking, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09769 Food Frequency Questionnaire - (FFQ)-salami bologna other processed meat sandwiches indicator

Average amount of salami, bologna, or other processed meat sandwiches the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19256 Study protocol name

Name of study protocol

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09729 Food Frequency Questionnaire - (FFQ)-blueberries fresh frozen canned indicator

Average total amount of blueberries, fresh, frozen, or canned the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09777 Food Frequency Questionnaire - (FFQ)-liver chicken turkey indicator

Average total amount of liver: chicken or turkey the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19402 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting muscle count

Number of muscles examined in long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09737 Food Frequency Questionnaire - (FFQ)-string beans indicator

Average total amount of string beans the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C06196 Oral laxative drops liquid type

Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19174 Other cardiac disorder type

Type of other cardiac disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09785 Food Frequency Questionnaire - (FFQ)-other cooked breakfast cereal indicator

Average total amount of other cooked breakfast cereal the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19416 Brain Motor Control Assessment (BMCA) - Response present indicator

Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09745 Food Frequency Questionnaire - (FFQ)-peas lima beans indicator

Average total amount of peas or lima beans the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19183 Vasopressor use indicator

Indicator for use of vasopressor

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09793 Food Frequency Questionnaire - (FFQ)-white rice indicator

Average total amount of white rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09880 Food Frequency Questionnaire - (FFQ)-fruit use ten years indicator

Indicator of how the subjects use of fruits changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09715 Food Frequency Questionnaire - (FFQ)-prune juice indicator

Average total amount of prune juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09840 Food Frequency Questionnaire - (FFQ)-peanuts indicator

Average total amount of peanuts the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09675 Food Frequency Questionnaire - (FFQ)-iron indicator

Iron indicator, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
Displaying 351 - 375 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.