CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 326 - 350 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental History of Injury Spinal Cord Injury Spinal Cord Injury
C19135 Days hospitalized count

Total number of days hospitalized

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C06222 Defecation deferral past three months indicator

The indicator of the ability to defer defecation for 15 minutes or more within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18141 Defecation method bowel care procedure other text

Text describing the other defecation method and bowel care procedure used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18786 Defecation method bowel care procedure used past four week main other text

The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18786 Defecation method bowel care procedure used past four week main other text

The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C18787 Defecation method bowel care procedure used past four week supplementary other text

The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18787 Defecation method bowel care procedure used past four week supplementary other text

The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06188 Defecation method bowel care procedure used past four week supplementary type

Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06188 Defecation method bowel care procedure used past four week supplementary type

Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06190 Defecation past four week average duration range

Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06190 Defecation past four week average duration range

Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06191 Defecation past four week average frequency

Average frequency of defecation within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06191 Defecation past four week average frequency

Average frequency of defecation within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C53029 Defecation uneasiness headache perspiration past four week indicator

The indicator related to uneasiness, headache or perspiration during defecation

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06213 Defecation unsuccessful frequency

The frequency of unsuccessful attempts at defecation within the last three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19211 Degenerative spine disorder surgery caused description

Description of surgery caused by degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19210 Degenerative spine disorder surgery caused indicator

Indicator for surgery caused by degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19212 Degenerative spine disorder surgery date

Date of surgery caused by degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
Displaying 326 - 350 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.