CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1791-C19364	C19364	Glasgow coma scale date and time	Date (and time, if known) of Glasgow Coma Scale assessment	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06317	C06317	Psychogenic erection scale	Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06463	C06463	Non traumatic spinal cord injury iatrogenic indicator	Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06240	C06240	Bowel dysfunction impact life quality scale	The self report scale that describes impact on quality of life caused by neurogenic bowel dysfunction.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14644	C14644	Functional Disability Inventory (FDI) - child form chore scale	The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2303-C22803	C22803	Pain manageable last week day count	Number of days the participant had manageable pain in the last week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C58652	C58652	Fall record time AM PM category	Category of the part of the day in which the time of the subject/participant's fall occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F0364-C07443	C07443	Satisfaction with Life Scale (SWLS) - Life condition excellence score	Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)	Supplemental	Satisfaction with Life Scale	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21627	C21627	Hospital transport board mattress pad indicator	Indicates whether the hospital transport board was modified with a double matress pad	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19316	C19316	Dermatome area name	Name of dermatome area	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C21658	C21658	Electrodiagnostic exam date	The date of the electrodiagnostic exam testing	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18144	C18144	Bowel care time stool pass care past three months average indicator	Indicator for whether the average time spent waiting for the last stool passes before ending bowel care is not applicable or unknown	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06258	C06258	Bladder function bladder sensation type	Documents the bladder sensation during filling cystometry. Although the bladder sensation is assessed during filling cystometry the assumption that it is sensation from the bladder alone, without urethral or pelvic components may be false (Abrams et al. 2002). Normal bladder sensation can be judged by three defined points noted during filling cystometry and evaluated in relation to the bladder volume at that moment and in relation to the patient's symptomatic complaints	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12693	C12693	Electrophysiology H-reflex nerve segment name	The nerve segment used for the H-reflex test	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19377	C19377	Spine subluxation translation level anatomic site	The anatomic site level as related to subluxation or translation of spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19479	C19479	Spinal cord injury mobility moderate distance status	The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18790	C18790	Perianal problem other text	The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.