CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22842 Pain current treatment side effect adverse event text

Free-text field to specify side effects or adverse events the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18122 Xray date

Date X-ray was performed

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14643 Functional Disability Inventory (FDI) - child form friend activity scale

The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C22802 Pain worst intensity past week scale

Scale for the worst pain intensity in the past week

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C21643 Fall details specify type

Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking

Supplemental Falls Diary Spinal Cord Injury Spinal Cord Injury
C21626 Hospital transport board cut-out indicator

Indicates whether the hospital transport board was modified with a cut-out

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19256 Study protocol name

Name of study protocol

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental History of Injury Spinal Cord Injury Spinal Cord Injury
C19097 Scoliosis surgical treatment indicator

Indicator for surgical treatment of scoliosis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19243 Sensory latency value

The value of latency in sensory response

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C06214 Rectal emptying incomplete frequency

The frequency of any sense of incomplete rectal emptying after defecation within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06190 Defecation past four week average duration range

Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18134 Cystogram result type

The type as related to the cystrogram result

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14651 Functional Disability Inventory (FDI) - child form watch TV scale

The scale of the child's or adolescent's ability to watch television when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C22810 Injury below level dynamic light touch response type

The type of response related to dynamic light touch below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C12688 Orthosis knee ankle foot orthosis ischial weight bearing indicator

Indicator whether any knee-ankle-foot orthosis (KAFO) currently used by the participant/subject is ischial weight bearing

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19403 Brain Motor Control Assessment (BMCA) - Test type

Type of protocol testing as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C01021 Pediatric Glasgow Coma Scale (PGCS) - motor response score

Score for the participant's motor response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19105 Upper extremity surgery right soft tissue restoration pinch performed indicator

The indicator for the surgical procedure of the restoration of right pinch and/or grasp in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06439 Fracture date

Date (and time, if applicable and known) the fracture occurred at each site

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06246 Medical history condition type

Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 301 - 325 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.