CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2303-C22825	C22825	Pain past treatment physiotherapy type	The type of past physiotherapy treatment the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19430	C19430	Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator	Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22332	C22332	Laboratory procedure anterior pituitary function prolactin plasma value	The value related to concentration of prolactin in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1728-C22777	C22777	Illicit drug indicator	Indicator of subject's use of illicit or non-prescription drugs	Supplemental	Substance Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19120	C19120	Upper extremity surgery left osteotomy fingers/thumb performed indicator	The indicator for the surgical procedure of the restoration of the left fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C19257	C19257	Residence area type	Type describing the participant's/subject's current location of residence	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19090	C19090	Stabilization and fusion segment number	The number of the stabilization and fusion segment in the surgical procedure	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19352	C19352	Quantitative sensory testing light touch assessment result	Result for assessment of light touch sensation in quantitative sensory testing	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18141	C18141	Defecation method bowel care procedure other text	Text describing the other defecation method and bowel care procedure used within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06375	C06375	Pressure ulcer largest depth measurement	Measurement of the largest depth of the pressure ulcer in mm	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06152	C06152	Imaging study urinary tract global result type	The type of results related to urinary tract from imaging of two kidneys	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22833	C22833	Pain past treatment procedural intervention type	The type of past procedural interentions the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22348	C22348	Laboratory procedure sympathetic nervous function norephrine seated standing plasma value	The value related to concentration of plasma norepinephrine when participant/subject is seated or standing	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21634	C21634	Diary day falls date	Date in the diary when the participant/subject recorded a fall	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19333	C19333	Arrival intubation indicator	Indicator for intubation on arrival	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C21647	C21647	Hand preference pre-injury type	Hand which the participant/subject used predominantly, not necessarily the hand he/she wrote with exclusively prior to injury	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06465	C06465	Non traumatic spinal cord injury etiology axis 1 level 4 category	The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 301 - 325 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.