CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18785 Gastrointestinal anal sphincter dysfunction unrelate SCI specify text

The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19327 Sensory evoked potential side nerve dermatome description text

Text of description of sensory evoked potential side nerve dermatome

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19387 Spine traumatic herniated nucleus polposus type

Type of traumatic herniated nucleus polposus in the spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C15918 Quantitative sensory testing test methodology type

Type of methodology used for QST imaging

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19141 Discipline other text

The free text field related to "Discipline types" specifying other text. The type of discipline

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C06314 Reflex genital arousal scale

Scale for how the female's reflex genital arousal is affected by the spinal cord injury

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18685 Hospital discharge destination other text

The free-text field related to 'Hospital discharge destination type' specifying other text. Type of destination on completion of stabilization/evaluation in hospital

Supplemental International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06317 Psychogenic erection scale

Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06237 Bowel care time stool pass care past three months average duration

The average time duration spent waiting after last stool passes before ending bowel care within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22231 Laboratory procedure 25 hydroxy vitamin D serum value

This variable documents low or normal body stores of vitamin D

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19085 Surgical procedure approach type

The type of approach taken in surgical procedure

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19347 Temperature average measurement value

Measurement of the participant's/subject's body average temperature

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19447 Spine sagittal canal diameter rostral injury measurement

Measurement of sagittal canal diameter rostral to injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C21653 Hand Orthosis Type

Type of hand orthosis the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06263 Bladder function detrusor maximum pressure value

Value of the maximum detrusor pressure on the participant/subject during filling cystometry

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C15934 Temperature skin measurement

The participant/subject's baseline skin temperature

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.