CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19159 Care provision level

The level of care provided to participant by health care facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C21660 Caregiver marital or partner status

Status of participant/subject's caregiver's current domestic relationship, whether marital or partnered

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C21659 Central motor conduction time

Duration of central motor conduction as part of motor evoked potential testing

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19279 Citizen country indicator

The indicator for whether participant is a citizen of country

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C18118 Clearance date

Clearance date

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18131 Clearance text

Clearance

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 Supplemental Other Investigational Treatments False Spinal Cord Injury Spinal Cord Injury
C19087 Closure date & time

Date and time the closure was performed by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

 Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19087 Closure date & time

Date and time the closure was performed by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06416 Colonic transit left side measurement

The transit time of the descending colon (including the splenic flexure) and the rectosigmoid assessed by means of radioopaque markers and measured in hours.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06416 Colonic transit left side measurement

The transit time of the descending colon (including the splenic flexure) and the rectosigmoid assessed by means of radioopaque markers and measured in hours.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Electrical Perceptual Thresholds False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Sympathetic Skin Responses False Spinal Cord Injury Spinal Cord Injury
C06252 Compression device type

Any compression device worn by the individual that may affect cardiovascular parameters during the examination.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06252 Compression device type

Any compression device worn by the individual that may affect cardiovascular parameters during the examination.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06292 Compression device type worn during examination indicator

Indicator of whether the participant/subject wore the particular compression device during the time of evaluation

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19206 Congenital deformity surgery caused description

Description of surgery caused by pre-existing congenital deformities of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19205 Congenital deformity surgery caused indicator

Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19207 Congenital deformity surgery date

The date of surgery on congenital deformity of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
Displaying 251 - 275 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.